Spinal Muscular Atrophy UK

"Spinal Muscular Atrophy UK" is an organisation with legal form CIO in the United Kingdom. It is active in the areas of education, healthcare, humanitarian & disaster relief and others.

gbCIOStratford-upon-AvonUnited KingdomEnglishFounded 2004

Mission

We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.

Governing document

CIO - FOUNDATION CONVERSIONDATED 20 SEP 2022

Charitable objects

  1. THE RELIEF OF PEOPLE LIVING WITH SPINAL MUSCULAR ATROPHY AND RELATED MEDICAL CONDITIONS AND TO RAISE THE PUBLIC'S AWARENESS OF SUCH CONDITIONS.2. THE RELIEF OF PERSONS WHO ARE IN NEED AFTER EXPERIENCING A BEREAVEMENT OR LOSS DUE TO SPINAL MUSCULAR ATROPHY.3. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY.

Area of benefit

NOT DEFINED.

People

View all people
Dr Gordon HarveyPresident
Lauren Elizabeth Jane West
Alistair Mark Emslie Smith
Srinivas Madipalli
Dr Anne Marie Childs
5 out of 13 people

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Some data is from the UK Register Of Charities - Licenced under Open Government 3

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